is neurofibromatosis deadly?

i was diagnosed with this and i was wonderring.... am i going to die?

Comments

  • My friend has had it all her quite long life.

    You do need to stay in close touch with your doctor.

  • Like the first poster mentioned, in some instances it can be. Make sure you a routinely monitored. Most patients live very normal lives.

    Apparently, my NF has severely reduced my lung diffusing capacity.

  • can be if gets in major organ ,ie,kidneys,liver,heart.............may take years.........ps,we all gonna die........

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